Featured Stories
YOUTH TEAM
Four of the newly elected members of the Management Committee, Alani, Anoop, Kgosi and Samantha are taking on the responsibility of managing the youth portfolio.
VISION STATEMENT
To create a platform to support and inspire South African youth with Inherited Retinal Disorders (IRD) to overcome and adapt to their circumstances and to ultimately become the best version of themselves.
MISSION STATEMENT
We work to create a platform where the youth are guided and informed to make a positive path for each individual. Through the guidance and experience of the team we aim to create a supportive environment
Alani Ferreira
Hi I am Alani Ferreira (22) and I am from Pietermaritzburg, KZN. I was diagnosed with Stargardts Macular Dystrophy at age 12 after noticing delays when playing tennis and trouble sight reading the piano.
Kgosietsile Mmoloke
My name is Kgosietsile Mmoloke a 30-year-old man, who is married with 3 daughters.
I was diagnosed with Cone Rod Dystrophy of both eyes in 2015.
Anoop Narotam
I am Dr Anoop Narotam (31) and living happily with my lovely wife on the East Rand of Johannesburg. I have known ophthalmologists for as long as I remember, being diagnosed with Stargardt’s Macular Dystrophy from a very young age.
Samantha Daniels
My name is Samantha Daniels and I reside in Cape Town, Western Cape.
I am a mother of 3 brave children and I have a genetic eye condition called Retinitis Pigmentosa (RP), which I was diagnosed with at age 4.
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